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Journal of Pediatric Psychology 14(1) pp. 117-132, 1989
© 1989 Society of Pediatric Psychology


research-article

Relation Between Severity of Chronic Illness and Adjustment in Children and Adolescents With Sickle Cell Disease1

Anita Landau Hurtig2, David Koepke and Kwang B. Park

University of Illinois at Chicago, Department of Pediatrics and Comprehensive Sickle Cell Center

2All correspondence should sent to Anita Landau Hurtig, University of Illinois at Chicago, Department of Pediatrics, 840 S. Wood Street, Chicago, Illinois 60612.

Tested the relationship between illness severity and adjustment in 70 sickle cell patients, aged 8–16. Illness severity was measured by frequency of hospitalization and emergency room visits, frequency and intensity of pain crises, and duration of illness. Adjustment variables were IQ, self-esteem, social and personal adjustment, behavioral problems, school performance, and peer relations. Medical variables–associated illness patterns and type of hemoglobinopathy–were also considered. Sex and age were covariates. The hypothesis that illness severity would affect adjustment was generally not supported. Other factors such as SES, family structure, or support systems may affect adjustment and suppress the hypothesized relationship. The need for a more global intervention approach than using illness severity to measure need for psychotherapeutic assistance is suggested.

Key words: sickle cell disease; adjustment; child and adolescent; illness severity.


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