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Journal of Pediatric Psychology 14(3) pp. 341-355, 1989
© 1989 Society of Pediatric Psychology

research-article

AIDS and Hemophilia: Implications for Interventions with Families1

Patrick J. Mason2, Roberta A. Olson, Jennifer G. Myers, Heather C. Huszti and Mary Kenning

Department of Pediatrics and Department of Psychiatry and Behavioral Sciences, University of Oklahoma Health Sciences Center, Department of Psychiatry and Behavioral Sciences, University of Oklahoma Health Sciences Center, Civil Aeromedical Institute, Federal Aviation Administration Oklahoma City, Oklahoma, Department of Pediatrics and Department of Psychiatry and Behavioral Sciences, University of Oklahoma Health Sciences Center, University of Nebraska

2All correspondence should sent to Patrick J. Mason, Department of Pediatrics, University of Oklahoma Health Sciences Center, Room 2B-265, P.O. Box 26901, Oklahoma City, Oklahoma 73190

Informational needs of hemophiliacs must first be assessed to develop effective educational and prevention programs. A survey of 132 hemophilia patients and family members was conducted to determine the information needs, the preferred source of information and the patients' knowledge of AIDS. Results indicated that the major source of information for the patients was the media; the preferred source was the hemophilia treatment center. Most patients wanted more information about the treatment of AIDS and how to cope with the stresses of AIDS. Although patients indicated that they had received sufficient information about the sexual transmission of AIDS, answers to knowledge questions indicated important misconceptions. Results are discussed with respect to the development of educational and prevention programs for hemophiliacs and their families.

Key words: hemophilia; AIDS; families; needs assessment.


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Current Sociology, December 1, 1992; 40(3): 105 - 117.



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