Journal of Pediatric Psychology 15(4) pp. 477-492, 1990
© 1990 Society of Pediatric Psychology
other |
Assessing Family Sharing of Diabetes Responsibilities1
Joslin Diabetes Center, Washington Univesity
2All corredpondence should be sent to Barbara J. Anderson, Mental Health Unit, Joslin Diabetes Center, One Joslin Place, Boston, Massachusetts 02215
This study examined sharing of diabetes responsibilities between mothers and their diabetic children and the relationship between patterns of mother-child sharing of responsibility for diabetes tasks and demographic variables, adherence, and methabolic functioning in children with insulin-dependent diabetes mellitus (IDDM). A factor analysis of the Diabetes Family Responsibility Questionnaire (DFRQ), a 17-item questionnaire developed for the present study, resulted in a meaningful three-factor solution. Factors included responsibilities related to regimen tasks, General Health Maintenance, and Social Presentation of Diabetes. Analyses indicated that the DFRQ had adequate internal consistency and concurrent valitity. One hundred and twenty-one children with IDDM, 6–21 years of age, and their mothers completed the DFRQ. Glycosylated hemoglobin (HbAlc) was used to index the child's level of metabolic control. Results of multiple regression analyses indicated that the child's age, disease duration, and sex are signigicant predictors of mother and child patterns of sharing diabetes responsibilities. Disagreements between mthers and children in perceptions of who is assuming responsibility and adherence level were significant predictors of HbAlc. Results indicated that children assume increasing responsibillity with increasing age. Clinicians should not assume that mothers and children communicate about teh sharing of diabetes responsiblities in the family or about changes in expectations of who is responsible as children develop. To foster better control and adherence in diabetic children, members of the health care team can help to identify diabetes tasks for which no one in the family takes responsibility.
Key words: diabetes; family; mother-child dyad; responsibility; treatment regimen; adherence.
CiteULike 
Connotea 
Del.icio.us What's this?
This article has been cited by other articles:
|
|
 |
|
  T. Wysocki, R. Iannotti, J. Weissberg-Benchell, L. Laffel, K. Hood, B. Anderson, R. Chen, and for the Family Management of Childhood Diabetes St Diabetes Problem Solving by Youths with Type 1 Diabetes and their Caregivers: Measurement, Validation, and Longitudinal Associations with Glycemic Control J. Pediatr. Psychol., September 1, 2008; 33(8): 875 - 884. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
D. L. Palmer, C. A. Berg, J. Butler, K. Fortenberry, M. Murray, R. Lindsay, D. Donaldson, M. Swinyard, C. Foster, and D. J. Wiebe Mothers', Fathers', and Children's Perceptions of Parental Diabetes Responsibility in Adolescence: Examining the Roles of Age, Pubertal Status, and Efficacy J. Pediatr. Psychol., July 16, 2008; (2008) jsn073v1. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
B. S. Aylward, M. C. Roberts, J. Colombo, and R. G. Steele Identifying the Classics: An Examination of Articles Published in the Journal of Pediatric Psychology from 1976-2006 J. Pediatr. Psychol., July 1, 2008; 33(6): 576 - 589. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
S. Naar-King, G. Montepiedra, S. Nichols, J. Farley, P. A. Garvie, B. Kammerer, K. Malee, P. A. Sirois, D. Storm, and PACTG P1042S Team Allocation of Family Responsibility for Illness Management in Pediatric HIV J. Pediatr. Psychol., June 27, 2008; (2008) jsn065v1. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
T. R. Nansel, A. J. Rovner, D. Haynie, R. J. Iannotti, B. Simons-Morton, T. Wysocki, B. Anderson, J. Weissberg-Benchell, and L. Laffel Development and Validation of the Collaborative Parent Involvement Scale for Youths with Type 1 Diabetes J. Pediatr. Psychol., June 21, 2008; (2008) jsn058v1. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
V. S. Helgeson, K. A. Reynolds, L. Siminerio, O. Escobar, and D. Becker Parent and Adolescent Distribution of Responsibility for Diabetes Self-care: Links to Health Outcomes J. Pediatr. Psychol., June 1, 2008; 33(5): 497 - 508. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
A. A. Hains, K. S. Berlin, W. H. Davies, A. F. Sato, M. K. Smothers, L. C. Clifford, and R. Alemzadeh Attributions of Teacher Reactions to Diabetes Self-care Behaviors J. Pediatr. Psychol., April 29, 2008; (2008) jsn041v1. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 American Diabetes Association Standards of Medical Care in Diabetes--2008 Diabetes Care, January 1, 2008; 31(Supplement_1): S12 - S54. [Full Text] [PDF]
|
|
|
|
|
|
J. Weissberg-Benchell, S. S. Goodman, J. Antisdel Lomaglio, and K. Zebracki The Use of Continuous Subcutaneous Insulin Infusion (CSII): Parental and Professional Perceptions of Self-care Mastery and Autonomy in Children and Adolescents J. Pediatr. Psychol., November 1, 2007; 32(10): 1196 - 1202. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
D. A. Ellis, C.-L. Podolski, M. Frey, S. Naar-King, B. Wang, and K. Moltz The Role of Parental Monitoring in Adolescent Health Outcomes: Impact on Regimen Adherence in Youth with Type 1 Diabetes J. Pediatr. Psychol., September 1, 2007; 32(8): 907 - 917. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
L. D. Cameron, M. J. Young, and D. J. Wiebe Maternal Trait Anxiety and Diabetes Control in Adolescents with Type 1 Diabetes J. Pediatr. Psychol., August 1, 2007; 32(7): 733 - 744. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
K. K. Hood, D. A. Butler, B. J. Anderson, and L. M.B. Laffel Updated and Revised Diabetes Family Conflict Scale Diabetes Care, July 1, 2007; 30(7): 1764 - 1769. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
A. A. Hains, K. S. Berlin, W. Hobart Davies, M. K. Smothers, A. F. Sato, and R. Alemzadeh Attributions of Adolescents with Type 1 Diabetes Related to Performing Diabetes Care around Friends and Peers: The Moderating Role of Friend Support J. Pediatr. Psychol., June 1, 2007; 32(5): 561 - 570. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
A. Lewandowski and D. Drotar The Relationship between Parent-Reported Social Support and Adherence to Medical Treatment in Families of Adolescents with Type 1 Diabetes J. Pediatr. Psychol., May 1, 2007; 32(4): 427 - 436. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
D. A. Ellis, J. Yopp, T. Templin, S. Naar-King, M. A. Frey, P. B. Cunningham, A. Idalski, and L. N. Niec Family Mediators and Moderators of Treatment Outcomes Among Youths with Poorly Controlled Type 1 Diabetes: Results From a Randomized Controlled Trial J. Pediatr. Psychol., March 1, 2007; 32(2): 194 - 205. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
American Diabetes Association Standards of Medical Care in Diabetes--2007 Diabetes Care, January 1, 2007; 30(suppl_1): S4 - S41. [Full Text] [PDF]
|
|
|
|
 |
|
 A. Wennick and I. Hallstrom Swedish families' lived experience when a child is first diagnosed as having insulin-dependent diabetes mellitus: an ongoing learning process. Journal of Family Nursing, November 1, 2006; 12(4): 368 - 389. [Abstract] [PDF]
|
|
|
|
|
|
T. Wysocki, M. A. Harris, L. M. Buckloh, K. Wilkinson, M. Sadler, N. Mauras, and N. H. White Self-Care Autonomy and Outcomes of Intensive Therapy or Usual Care in Youth with Type 1 Diabetes J. Pediatr. Psychol., November 1, 2006; 31(10): 1036 - 1045. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
C. S. Holmes, R. Chen, R. Streisand, D. E. Marschall, S. Souter, E. E. Swift, and C. C. Peterson Predictors of Youth Diabetes Care Behaviors and Metabolic Control: A Structural Equation Modeling Approach J. Pediatr. Psychol., September 1, 2006; 31(8): 770 - 784. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
R. M. Beveridge, C. A. Berg, D. J. Wiebe, and D. L. Palmer Mother and Adolescent Representations of Illness Ownership and Stressful Events Surrounding Diabetes J. Pediatr. Psychol., September 1, 2006; 31(8): 818 - 827. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
K. K. Hood, S. Huestis, A. Maher, D. Butler, L. Volkening, and L. M.B. Laffel Depressive Symptoms in Children and Adolescents With Type 1 Diabetes: Association with diabetes-specific characteristics. Diabetes Care, June 1, 2006; 29(6): 1389 - 1389. [Full Text] [PDF]
|
|
|
|
|
|
T. Wysocki and L. Gavin Paternal Involvement in the Management of Pediatric Chronic Diseases: Associations with Adherence, Quality of Life, and Health Status J. Pediatr. Psychol., June 1, 2006; 31(5): 501 - 511. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 H M Pattison, S Moledina, and T G Barrett The relationship between parental perceptions of diabetes and glycaemic control Arch. Dis. Child., June 1, 2006; 91(6): 487 - 490. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
A. A. Hains, K. S. Berlin, W. H. Davies, E. A. Parton, and R. Alemzadeh Attributions of Adolescents With Type 1 Diabetes in Social Situations: Relationship with expected adherence, diabetes stress, and metabolic control Diabetes Care, April 1, 2006; 29(4): 818 - 822. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
A. B. Lewin, A. D. Heidgerken, G. R. Geffken, L. B. Williams, E. A. Storch, K. M. Gelfand, and J. H. Silverstein The Relation Between Family Factors and Metabolic Control: The Role of Diabetes Adherence J. Pediatr. Psychol., March 1, 2006; 31(2): 174 - 183. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
American Diabetes Association Standards of Medical Care in Diabetes-2006 Diabetes Care, January 1, 2006; 29(suppl_1): S4 - S42. [Full Text] [PDF]
|
|
|
|
|
|
R. Streisand, E. Swift, T. Wickmark, R. Chen, and C. S. Holmes Pediatric Parenting Stress Among Parents of Children with Type 1 Diabetes: The Role of Self-Efficacy, Responsibility, and Fear J. Pediatr. Psychol., September 1, 2005; 30(6): 513 - 521. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
K. M. Hanna, L. A. DiMeglio, and J. D. Fortenberry Parent and Adolescent Versions of the Diabetes-Specific Parental Support for Adolescents' Autonomy Scale: Development and Initial Testing J. Pediatr. Psychol., April 1, 2005; 30(3): 257 - 271. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
D. J. Wiebe, C. A. Berg, C. Korbel, D. L. Palmer, R. M. Beveridge, R. Upchurch, R. Lindsay, M. T. Swinyard, and D. L. Donaldson Children's Appraisals of Maternal Involvement in Coping With Diabetes: Enhancing Our Understanding of Adherence, Metabolic Control, and Quality of Life Across Adolescence J. Pediatr. Psychol., March 1, 2005; 30(2): 167 - 178. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
American Diabetes Association Standards of Medical Care in Diabetes Diabetes Care, January 1, 2005; 28(suppl_1): S4 - S36. [Full Text] [PDF]
|
|
|
|
|
|
S. A. Soutor, R. Chen, R. Streisand, P. Kaplowitz, and C. S. Holmes Memory Matters: Developmental Differences in Predictors of Diabetes Care Behaviors J. Pediatr. Psychol., October 1, 2004; 29(7): 493 - 505. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
M. De Civita and P. L. Dobkin Pediatric Adherence as a Multidimensional and Dynamic Construct, Involving a Triadic Partnership J. Pediatr. Psychol., April 1, 2004; 29(3): 157 - 169. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
A. E. Mellin, D. Neumark-Sztainer, and J. M. Patterson Parenting Adolescent Girls with Type 1 Diabetes: Parents' Perspectives J. Pediatr. Psychol., April 1, 2004; 29(3): 221 - 230. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
T. Wysocki and L. Gavin Psychometric Properties of a New Measure of Fathers' Involvement in the Management of Pediatric Chronic Diseases J. Pediatr. Psychol., April 1, 2004; 29(3): 231 - 240. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
D. L. Palmer, C. A. Berg, D. J. Wiebe, R. M. Beveridge, C. D. Korbel, R. Upchurch, M. T. Swinyard, R. Lindsay, and D. L. Donaldson The Role of Autonomy and Pubertal Status in Understanding Age Differences in Maternal Involvement in Diabetes Responsibility across Adolescence J. Pediatr. Psychol., January 1, 2004; 29(1): 35 - 46. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
D. Logan, N. Zelikovsky, L. Labay, and J. Spergel The Illness Management Survey: Identifying Adolescents' Perceptions of Barriers to Adherence J. Pediatr. Psychol., September 1, 2003; 28(6): 383 - 392. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 K. M. Hanna and D. W. Guthrie Parental Involvement in Adolescents' Diabetes Management Diabetes Spectr, July 1, 2003; 16(3): 184 - 187. [Full Text] [PDF]
|
|
|
|
|
|
V. A. Miller and D. Drotar Discrepancies Between Mother and Adolescent Perceptions of Diabetes-Related Decision-Making Autonomy and Their Relationship to Diabetes-Related Conflict and Adherence to Treatment J. Pediatr. Psychol., June 1, 2003; 28(4): 265 - 274. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
C. J. Dashiff Self- and Dependent-Care Responsibility of Adolescents with IDDM and their Parents Journal of Family Nursing, May 1, 2003; 9(2): 166 - 183. [Abstract] [PDF]
|
|
|
|
 |
|
 K. M. Hanna and D. Guthrie Adolescents' Behavioral Autonomy Related to Diabetes Management and Adolescent Activities/Rules The Diabetes Educator, March 1, 2003; 29(2): 283 - 291. [Abstract] [PDF]
|
|
|
|
|
|
A. M. La Greca and K. J. Bearman The Diabetes Social Support Questionnaire-Family Version: Evaluating Adolescents' Diabetes-Specific Support From Family Members J. Pediatr. Psychol., December 1, 2002; 27(8): 665 - 676. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
K. J. Bearman and A. M. La Greca Assessing Friend Support of Adolescents' Diabetes Care: The Diabetes Social Support Questionnaire-Friends Version J. Pediatr. Psychol., July 1, 2002; 27(5): 417 - 428. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
J. S. Pendley, L. J. Kasmen, D. L. Miller, J. Donze, C. Swenson, and G. Reeves Peer and Family Support in Children and Adolescents With Type 1 Diabetes J. Pediatr. Psychol., July 1, 2002; 27(5): 429 - 438. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
S. Cook, K. Herold, D. V. Edidin, and R. Briars Increasing Problem Solving in Adolescents With Type 1 Diabetes: The Choices Diabetes Program The Diabetes Educator, January 1, 2002; 28(1): 115 - 124. [Abstract] [PDF]
|
|
|
|
|
|
K. M. Hanna and D. W. Guthrle Health-Compromising Behavior and Diabetes Mismanagement Among Adolescents and Young Adults With Diabetes The Diabetes Educator, March 1, 2001; 27(2): 223 - 230. [Abstract] [PDF]
|
|
|
|
 |
|
 R. J. Shaw Treatment Adherence in Adolescents: Development and Psychopathology Clinical Child Psychology and Psychiatry, January 1, 2001; 6(1): 137 - 150. [Abstract] [PDF]
|
|
|
|
|
|
S. Coffman Community Partnerships for Parent-to-Parent Support The Diabetes Educator, January 1, 2001; 27(1): 36 - 44. [PDF]
|
|
|
|
|
|
T. C. Skinner, M. John, and S. E. Hampson Social Support and Personal Models of Diabetes as Predictors of Self-Care and Well-Being: A Longitudinal Study of Adolescents With Diabetes J. Pediatr. Psychol., June 1, 2000; 25(4): 257 - 267. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 D. G. Schlundt, M. E. Flannery, D. L. Davis, C. K. Kinzer, and J. W. Pichert Evaluation of a Multicomponent, Behaviorally Oriented, Problem-Based "Summer School" Program for Adolescents with Diabetes Behav Modif, January 1, 1999; 23(1): 79 - 105. [Abstract] [PDF]
|
|
|
|
|
|
E. A. Boland, M. Grey, J. A. Mezger, and W. V. Tamborlane A Summer Vacation From Diabetes: Evidence From a Clinical Trial The Diabetes Educator, January 1, 1999; 25(1): 31 - 40. [Abstract] [PDF]
|
|
|
|
|
|
D. A. Standiford, A. M. Turner, S. R. Allen, D. J. Drozda, and G. C. McCain Personal Illness Models of Diabetes: Preadolescents and Adolescents The Diabetes Educator, January 1, 1997; 23(2): 147 - 151. [PDF]
|
|
|
|
|
|
T. E. Burroughs, M. A. Harris, S. L. Pontious, and J. V. Santiago Research on Social Support In Adolescents With IDDM: A Critical Review The Diabetes Educator, January 1, 1997; 23(4): 438 - 448. [PDF]
|
|
|
|
|
|
T. Wysocki, P. M. Meinhold, A. Taylor, B. S. Hough, M. U. Barnard, W. L. Clarke, B. J. Bellando, and M. J. Bourgeois Psychometric Properties and Normative Data for the Parent Version of the Diabetes Independence Survey The Diabetes Educator, January 1, 1996; 22(6): 587 - 591. [PDF]
|
|
|
|
|
|
J. McKelvey, D. A. Waller, A. J. North, J. F. Marks, B. Schreiner, L. B. Travis, and Jayn. Murphy Reliability and Validity of the Diabetes Family Behavior Scale (DFBS) The Diabetes Educator, January 1, 1993; 19(2): 125 - 132. [PDF]
|
|
|
|
|
|
Carolp. Saucier and W. M. Clark The Relationship Between Self-Care and Metabolic Control in Children with Insulin-Dependent Diabetes Meffitus The Diabetes Educator, January 1, 1993; 19(2): 133 - 135. [PDF]
|
|