Journal of Pediatric Psychology 15(5) pp. 643-658, 1990
© 1990 Society of Pediatric Psychology
research-article |
Pain in Children and Adolescents with Sickle Cell Disease: A Descriptive Study1
Albert Einstein College of Medicine Schneider Children's Hospital of Long Island Jewish Medical Center, University of Chicago
All correspondence should be sent to Gary A Walco, Division of Developmental and Behavioral Pediatrics, Schneider Children's Hospital, Long Island Jewish Medical Center, New Hyde Park, New York 11042
In sickle cell disease, vaso-occlusion in the small blood vessels leads to bone or joint pain which is variable in intensity and duration. An essential first step toward the development of specific treatment guidelines for such painful episodes in children and adolescents is the accurate evaluation of pain. The systematic assessment of vaso-occlusive pain is addressed through two separate studies. In the first, 35 pediatric sickle cell disease patients between 5 and 16 years of age were evaluated in an outpatient clinic with the Varni/Thompson Pediatric Pain Questionnaire. In the second, data were gathered over the course of hospitahzations for uncomplicated vaso-occlusive episodes in 17 adolescent patients. Results showed that this pain experience can be quantified, that vaso-occlusive pain spans a broad range of intensity levels, and that there are a number of socioemotional factors associated with the pain experience. Further research to systematically assess the psychometric properties of pain assessment instrument is recommended.
Key words: sickle cell disease; pain assessment; children; adolescents; vaso-occlusion.
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