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Journal of Pediatric Psychology 16(2) pp. 137-149, 1991
© 1991 Society of Pediatric Psychology


research-article

The Impact of Maternal Perceptions and Medical Severity on the Adjustment of Children with Congenital Heart Disease

David R. DeMaso1,, Leslie K. Campis, David Wypij, Susan Bertram, Martha Lipshitz and Michael Freed

The Children's Hospital Boston, Harvard School of Public Health, Hood College, The Children's Hospital Boston

1All correspondence should be sent to David R. DeMaso, Department of Psychiatry, The Children's Hospital, 300 Longwood Avenue, Boston, Massachusetts 02115

Hypothesized that maternal perceptions would be more significant predictors of emotional adjustment than medical severity. Mothers of 99 children, between the ages 4–10 years, completed the Child Behavior Checklist, Parenting Stress Index, Parental Locus of Control Scale, and a measure of perception of medical severity. Assessed medical severity by number of hospitalizations, operations, catheterizations, hospital days, outpatient visits, and a cardiologist's rating of illness severity. Maternal perceptions were potent predictors of emotional adjustment. Approximately 33% of the variability in adjustment was accounted for by maternal perceptions, while the medical severity accounted for less than 3% of the variability. Severity of illness appears less critical to successful adaptation than the quality of the mother–child relationship.

Key words: adaptation; interaction; parenting; severity; congenital heart disease.


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