Journal of Pediatric Psychology 16(5) pp. 557-568, 1991
© 1991 Society of Pediatric Psychology
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Disease Experience and Psychosocial Adjustment in Children with Juvenile Rheumatoid Arthritis: Children's Versus Mothers' Reports1
University of North Carolina at Chapel Hill, University of North Carolina School of Medicine and Duke University School of Medicine, Baylor College of Medicine, University of North Carolina at Chapel Hill
2All correspondence should be sent to Brenda M. DeVellis, School of Public Health, The University of North Carolina, CB # 7400, Rosenau Hall, Chapel Hill, North Carolina 27599–7400.
Adjustment in children with juvenile rheumatoid arthritis (JRA) has been evaluated most frequently by parental or teacher reports and with reference to disease severity. In this study, 38 children, ages 7 to 13 with JRA, and their mothers were interviewed. Modest correlations were found between children and mothers in their assessments of children's perceived competence in several domains (i.e., athletic competence, social acceptance, physical attractiveness, and global self-worth) and in their perceptions of how JRA is experienced by children and families. Children's perceptions of the disease experience were significantly correlated with the four measures of perceived competence, even after controlling for disease severity. The results highlight the importance of cross-validating parental reports with children's self-reports, and demonstrate the need to consider variables other than disease severity—in particular how JRA is interpreted by children—in predicting their adjustment.
Key words: disease experience; disease severity; juvenile rheumatoid arthritis; psychosocial adjustment.
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