Journal of Pediatric Psychology 18(5) pp. 621-637, 1993
© 1993 Society of Pediatric Psychology
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Sickle Cell Disease Pain in Children and Adolescents: Change in Pain Frequency and Coping Strategies Over Time1
Duke University Medical Center
2All correspondence should be sent to Karen M. Gil, Pain Management Program, Box 3159, Duke University Medical Center, Durham, North Carolina 27710.
Examined 9-month follow-up data obtained from children and adolescents with sickle cell disease (SCD) and their parents participating in a longitudinal study of pain coping strategies. Of 87 subjects completing the baseline assessment of pain coping strategies, 70 (80%) of their parents completed a structured pain interview assessing their child's health care use and activity reduction during painful episodes over the follow-up period. Regression analyses controlling for age and pain frequency revealed that baseline Coping Attempts were associated with higher levels of school, household, and social activity during painful episodes. Baseline Passive Adherence was associated with more frequent health care contacts during the subsequent 9 months. Increases in Negative Thinking over time were associated with further increases in health care contacts during the follow-up period. Comparing pain coping strategies assessed at baseline to pain coping strategies measured at follow-up revealed that pain coping strategies were relatively stable over time for younger children but changed more for adolescents.
Key words: sickle cell disease; childhood pain; coping strategies; health care utilization; longitudinal follow-up.
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