Journal of Pediatric Psychology 20(5) pp. 567-586, 1995
© 1995 Society of Pediatric Psychology
research-article |
Late Psychosocial Consequences for Parents of Children Who Survived Cancer1
Sophia Children's Hospital/Erasmus University Rotterdam, The Netherlands, Institute for Health and Environmental Issues Willemslad, The Netherlands, Sophia Children's Hospital/Erasmus University Rotterdam, The Netherlands
3All correspondence should be sent to J. E. W. M. Van Dongen-Melman, Department of Child and Adolescent Psychiatry, Sophia Children's Hospital, Dr. Molewaterplein 60, 3015 GJ Rotterdam, The Netherlands
Investigated late psychosocial sequelae in 133 parents of children who survived cancer, using questionnaires developed to measure the specific impact of the disease. Childhood cancer had distinct and persistent late psychosocial effects on parents of survivors. Uncertainty and loneliness were the most reported problems. Demographic and situational characteristics such as being a mother, low SES, no religious affiliation, chronic disease in a family member other than the child surviving cancer, and concurrent stresses increased the risk of reporting late problems. Treatment itself had little or no effect on reported problems. However, when treatment led to long-term sequelae in the child, a significant and specific effect on parental problems was observed. No decline of problems over time was found, which has implications for patient care.
Key words: childhood cancer; long-term survivors; parents; psychosocial functioning.
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