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Journal of Pediatric Psychology 23(6) pp. 377-388, 1998
© 1998 Society of Pediatric Psychology

research-article

Family Functioning and Social Support in the Adaptation of Caregivers of Children With Sickle Cell Syndromes

Carolyn E. levers1, Ronald T. Brown2,, Richard G. Lambert3, Lewis Hsu1 and James R. Eckman1

1Emory University School of Medicine Charlotte, 2Medical University of South Carolina Charlotte, 3University of North Carolina Charlotte

This research was supported in full by the National Institutes of Health (NIH) Grant 1-P60HL48–;482. We would like to acknowledge the contribution of Thomas Adamkiewicz, MD, for his assistance in the recruitment of subjects for this investigation and of Robert j. Thompson, Jr., PhD, for his comments on an earlier draft of the manuscript. All correspondence should be sent to: Ronald T. Brown, Department of Pediatrics, Medical University of South Carolina, Children's Hospital, 171 Ashley Avenue, Charleston, South Carolina 29425. E-mail: brovmron{at}musc.edu.

Objective: To examine moderating effects of family functioning and social support on the relationship of child-related stressors to caregivers' psychological adaptation in a sample of caregivers of children with a chronic illness.

Method: Participants were 67 caregivers of children and adolescents with sickle cell syndromes. We conducted MANOVAs and subsequent effect size calculations to determine if family functioning would buffer the effects of caring for difficult-to-manage children with this illness.

Results: Findings supported a moderator effect of family functioning on the association of children's externalizing behavioral problems to caregivers symptoms of hostility. Greater levels of cohesive and adaptive family functioning buffered the potential detrimental effects of caring for children perceived as hard to manage. No significant associations were obtained between measures of caregivers' psychological adaptation and the severity of their children's disease.

Conclusions: We make recommendations for family systems interventions, particularly for caregivers of children with behavior problems.

Key words: sickle cell syndrome; family functioning.


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