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Journal of Pediatric Psychology, Vol. 28, No. 7, 2003, pp. 473-484
© 2003 Society of Pediatric Psychology

Parental Stress in Mothers of Boys with Duchenne Muscular Dystrophy

Nancy E. Nereo, PhD1, Robert J. Fee, BA2 and Veronica J. Hinton, PhD2,3

1 Children's Hospital and Health Center and University of California, San Diego, 2 Gertrude H. Sergievsky Center, Columbia University, 3 Department of Neurology, College of Physicians and Surgeons, Columbia University

All correspondence should be addressed to: Veronica J. Hinton, PhD, Assistant Professor of Neuropsychology, Gertrude H. Sergievsky Center, College of Physicians and Surgeons, Columbia University, 630 West 168th Street, P & S Box 16, New York, New York 10032. E-mail: hintonv{at}sergievsky.cpmc.columbia.edu.

Objective To examine parental stress in mothers of boys with Duchenne muscular dystrophy (DMD). Method Stress and its predictors were examined in mothers of boys with DMD (n = 112). Comparisons were made with mothers of healthy children (n = 800), children with cerebral palsy (CP; n = 28), siblings of boys with DMD (n = 46), and longitudinally (n = 16). Results The presence of problem child behaviors consistently predicted maternal stress. Stress related to child behavior was higher in the DMD versus the normative group. No differences in stress were found in the DMD versus CP groups. Stress related to boys with DMD versus siblings was not significantly different. Over time, maternal stress related to child variables diminished. Conclusion Stress in mothers of boys with DMD is elevated, possibly due to increased problem behaviors, particularly in social interactions, rather than due to the physical demands of the disease alone.

Key words: Duchenne muscular dystrophy; parental stress; family functioning.


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