Journal of Pediatric Psychology, Vol. 28, No. 8, 2003, pp. 535-546
© 2003 Society of Pediatric Psychology
Validation of a Disease-Specific Measure of Health-Related Quality of Life for Children with Cystic Fibrosis
1 Department of Clinical and Health Psychology, University of Florida, 2 Department of Psychology, University of Miami
All correspondence concerning this article should be addressed to Avani Modi, Department of Clinical and Health Psychology, University of Florida, 101 South Newell Dr. (Rm. 3151), PO Box 100165, Gainesville, Florida 32610. E-mail: amodi{at}hp.ufl.edu.
Objective The purpose of the current study was to evaluate the
psychometric properties of the Cystic Fibrosis Questionnaire (CFQ)–Child
version, a disease-specific health-related quality of life (HRQOL) measure for
children with cystic fibrosis (CF). Method The CFQ was administered to
84 children with CF, ranging in age from 7 to 13 years, and their parents.
Results Multitrait analyses indicated that a majority of items on the
CFQ-Child correlated more highly with their hypothesized scale than a
competing scale. Internal consistency coefficients were acceptable for all
scales (Cronbach's 
= .60–.76), with the exception of treatment
burden (Cronbach's = .44). Results also suggested strong convergence
between child and parent-proxy reports on several scales of the CFQ.
Conclusion Results demonstrated that the CFQ-Child is a reliable and
valid measure of HRQOL for children with CF.
Key words: health-related quality of life; children; Cystic Fibrosis; validation.
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