Cancer-Related Parental Beliefs: The Family Illness Beliefs Inventory (FIBI)
1 The Children’s Hospital of Philadelphia and the University of Pennsylvania, 2 The Children’s Hospital of Philadelphia, and 3 the University of Pennsylvania
All correspondence should be sent to Anne E. Kazak, The Children’s Hospital of Philadelphia, 34th St. and Civic Center Blvd., Room 1486 CHOP North, Philadelphia, Pennsylvania 19104–3299. E-mail: kazak{at}email.chop.edu.
Objective The goal of this study was to develop a reliable and valid method for assessing the cancer-related beliefs of parents with a child in treatment for cancer. Method One hundred twenty-five families (119 mothers, 56 fathers) completed a measure of cancer-related beliefs written to reflect common themes associated with the diagnosis and treatment of childhood cancer. Participants also completed self-report questionnaires used for validation of the Family Illness Beliefs Inventory (FIBI). Results Principal-components analysis was used to derive a 41-item five-factor solution from the maternal data—Factor 1: Treatment-Related Suffering; Factor 2: Death and Devastation; Factor 3: Caregiver Competence; Factor 4: Connection; and Factor 5: Finding Meaning. Correlations with validation measures supported the factor structure. Paternal data showed similar patterns. Conclusions The FIBI is a psychometrically sound method for identifying parental cancer-related beliefs. This measure may be helpful in developing and evaluating interventions to reduce parental distress related to childhood cancer and promote adaptive family functioning.
Key words: parents; families; beliefs; childhood cancer.
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