Skip Navigation


Journal of Pediatric Psychology Advance Access originally published online on May 25, 2005
Journal of Pediatric Psychology 2006 31(3):310-321; doi:10.1093/jpepsy/jsj034
This Article
Right arrow Full Text Freely available
Right arrow FREE Full Text (PDF) Freely available
Right arrow All Versions of this Article:
31/3/310    most recent
jsj034v1
Right arrow Alert me when this article is cited
Right arrow Alert me if a correction is posted
Services
Right arrow Email this article to a friend
Right arrow Similar articles in this journal
Right arrow Similar articles in ISI Web of Science
Right arrow Similar articles in PubMed
Right arrow Alert me to new issues of the journal
Right arrow Add to My Personal Archive
Right arrow Download to citation manager
Right arrow Search for citing articles in:
ISI Web of Science (7)
Right arrowRequest Permissions
Right arrow Disclaimer
Google Scholar
Right arrow Articles by Bonner, M. J.
Right arrow Articles by Carter, K.
Right arrow Search for Related Content
PubMed
Right arrow PubMed Citation
Right arrow Articles by Bonner, M. J.
Right arrow Articles by Carter, K.
Social Bookmarking
Add to CiteULike   Add to Connotea   Add to Del.icio.us  
What's this?

© The Author 2005. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oupjournals.org

Development and Validation of the Parent Experience of Child Illness

Melanie J. Bonner, PhD1,2, Kristina K. Hardy, PhD1, Ann B. Guill, MDN2, Colleen McLaughlin, MSN, CPNP2, Holly Schweitzer, BS2 and Karen Carter, BA2

1 Division of Medical Psychology, Duke University Medical Center, and 2 The Brain Tumor Center at Duke, Duke University Medical Center

All correspondence concerning this article should be addressed to Melanie J. Bonner, Box 3527, Duke University Medical Center, Durhum, NC 27710. E-mail: bonne002{at}mc.duke.edu.

Received October 18, 2004; revision received February 1, 2005 and April 13, 2005; accepted April 19, 2005

Objective To develop a measure of parent adjustment related to caring for a child with a chronic illness and to evaluate the reliability and validity of the measure with a group of parents of children with brain tumors. Methods One-hundred forty-nine parents of patients (age <1–17 years) diagnosed with a brain tumor were assessed using the 25-item self-report Parent Experience of Child Illness (PECI). Internal consistency, construct validity, and factor structure were assessed. Results Exploratory factor analysis yielded four theoretically coherent factors including: Guilt and Worry, Emotional Resources, Unresolved Sorrow and Anger, and Long-term Uncertainty. Internal reliability for the PECI scales ranged from .72 to .89, suggesting acceptable reliability. As evidence of construct validity, the PECI scales show significant, positive correlations with scales from established measures of parent adjustment. Conclusion The PECI augments the current literature by providing a brief measure of parents’ subjective distress and perceived Emotional Resources, domains that are critical but understudied in children with chronic illness and their caregivers.

Key words: measure development; parent adjustment; pediatric neuro-oncology.


Add to CiteULike CiteULike   Add to Connotea Connotea   Add to Del.icio.us Del.icio.us    What's this?


This article has been cited by other articles:


Home page
 J Pediatr PsycholHome page
C. M. Jantien Vrijmoet-Wiersma, J. M. M. van Klink, A. M. Kolk, H. M. Koopman, L. M. Ball, and R. Maarten Egeler
Assessment of Parental Psychological Stress in Pediatric Cancer: A Review
J. Pediatr. Psychol., August 1, 2008; 33(7): 694 - 706.
[Abstract] [Full Text] [PDF]

Home page
 J Pediatr PsycholHome page
M. J. Bonner, K. K. Hardy, V. W. Willard, and K. C. Hutchinson
Brief Report: Psychosocial Functioning of Fathers as Primary Caregivers of Pediatric Oncology Patients
J. Pediatr. Psychol., August 1, 2007; 32(7): 851 - 856.
[Abstract] [Full Text] [PDF]


Disclaimer:
Please note that abstracts for content published before 1996 were created through digital scanning and may therefore not exactly replicate the text of the original print issues. All efforts have been made to ensure accuracy, but the Publisher will not be held responsible for any remaining inaccuracies. If you require any further clarification, please contact our Customer Services Department.