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Journal of Pediatric Psychology Advance Access originally published online on July 7, 2005
Journal of Pediatric Psychology 2006 31(5):501-511; doi:10.1093/jpepsy/jsj042
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© The Author 2005. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oupjournals.org

Paternal Involvement in the Management of Pediatric Chronic Diseases: Associations with Adherence, Quality of Life, and Health Status

Tim Wysocki, PhD1 and Leslie Gavin, PhD

1 Nemours Children’s Clinic at Jacksonville and 2 Nemours Children’s Clinic at Orlando

All correspondence concerning this article should be addressed to Tim Wysocki, PhD, Center for Pediatric Psychology Research, Nemours Children’s Clinic, 807 Children’s Way, Jacksonville, Florida 32207. E-mail: twysocki{at}nemours.org.

Received May 19, 2004; revision received November 18, 2004, March 22, 2005, and May 26, 2005; accepted June 7, 2005

Objectives This article reports associations among paternal involvement in pediatric chronic disease management and child outcomes. Methods The Dads’ Active Disease Support scale (DADS) and measures of treatment adherence, quality of life, health status, and health care utilization were obtained for youths with six chronic diseases, with complete data sets obtained from 190 couples. Results Paternal involvement was not associated with these outcomes among younger children. Among adolescents, mother-reported and father-reported DADS scores indicating more paternal involvement were associated with maintenance, rather than deterioration, of treatment adherence and more favorable quality of life. Youths’ health status and health care utilization were not related significantly to paternal involvement. Conclusions More paternal involvement was associated with more favorable adherence and quality of life among adolescents but not associated with health status or health care utilization. Longitudinal studies could verify whether paternal involvement merits clinical intervention.

Key words: coping; fathers; involvement; pediatric chronic disease.


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