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Journal of Pediatric Psychology Advance Access originally published online on January 9, 2006
Journal of Pediatric Psychology 2006 31(8):846-858; doi:10.1093/jpepsy/jsj096
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© The Author 2006. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org

Barriers to Treatment Adherence for Children with Cystic Fibrosis and Asthma: What Gets in the Way?

Avani C. Modi, PhD1 and Alexandra L. Quittner, PhD2

1 Cincinnati Children’s Hospital Medical Center, and 2 University of Miami

All correspondence concerning this article should be addressed to Avani C. Modi, PhD, Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children’s Hospital Medical Center, 3333 Burnet Ave. MLC 3015, Cincinnati, Ohio 45229. E-mail: avani.modi{at}cchmc.org.

Received February 23, 2005; revision received August 3, 2005, September 30, 2005 and November 28, 2005; accepted December 7, 2005

Objectives The purpose of this study was to systematically identify barriers to treatment adherence for children with cystic fibrosis (CF) and asthma, as well as to examine the relationship between the number of barriers and adherence. Methods Participants included 73 children with CF or asthma and their parents. The mean age of the sample was 9.9 years, and 58% were males. Results Results indicated that barriers were quite similar by illness and informant (e.g., parent and child) for the same treatments, but unique barriers were identified for disease-specific treatments. Frequently mentioned barriers across diseases included forgetting, oppositional behaviors, and difficulties with time management. Trends were identified between adherence and barriers, suggesting that a greater number of barriers were related to poorer adherence. Conclusion Overall, this study provided evidence that patients and their parents experience specific barriers within the context of their own illness and highlights the need for disease-specific measures and interventions.

Key words: barriers; knowledge; patient–provider communication; pulmonary; treatment.


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