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Journal of Pediatric Psychology Advance Access originally published online on July 18, 2007
Journal of Pediatric Psychology 2007 32(10):1214-1226; doi:10.1093/jpepsy/jsm054
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© The Author 2007. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org

Parents’ Social Adjustment in Families of Children with Spina Bifida: A Theory-driven Review

Ignace P. R. Vermaes, PhD, Jan R. M. Gerris, PhD and Jan M. A. M. Janssens, PhD

Behavioural Science Institute, Radboud University Nijmegen, The Netherlands

All correspondence concerning this article should be addressed to Ignace Vermaes, Behavioural Science Institute, Radboud University Nijmegen, PO Box 9104, 6500 HE Nijmegen, The Netherlands. E-mail: i.vermaes{at}pwo.ru.nl.


  Abstract

Objective Five theoretical hypotheses about the impact of spina bifida (SB) on parents’ social adjustment in the parent–child, the marital and the family-level relationship were tested. Methods PsycInfo, Medline and reference lists were searched. This yielded 27 eligible reports. Effect sizes (Hedges’ d) were computed to estimate the impact of SB. Results Overall, the effects of SB were small to negligible on the affective dimensions of parents’ relationships. The few effects that were found tended to be positive. The most important negative effects of SB were found in the parent–child relationship (parenting stress and overprotection). Conclusions Support was found for the resilience–disruption hypothesis, the role-division hypothesis and the miscarried-helping hypothesis, but not for the marital-disruption hypothesis or the marginality hypothesis.

Key words: family; parents; psychosocial adjustment; review; spina bifida.

Received May 31, 2006; revision received June 6, 2007; accepted June 8, 2007


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