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Journal of Pediatric Psychology Advance Access originally published online on September 29, 2007
Journal of Pediatric Psychology 2008 33(4):408-421; doi:10.1093/jpepsy/jsm079
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© The Author 2007. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org

Single Parents of Children with Chronic Illness: An Understudied Phenomenon

Ronald T. Brown, PhD1, Lori Wiener, PhD2, Mary Jo Kupst, PhD3, Tara Brennan, Psy.D2, Richard Behrman, MD4, Bruce E. Compas, PhD5, T. David Elkin, PhD6, Diane L. Fairclough7, Sarah Friebert, MD8, Ernest Katz, PhD9, Anne E. Kazak, PhD10, Avi Madan-Swain, PhD11, Nancy Mansfield, PhD9, Larry L. Mullins, PhD12, Robert Noll, PhD13, Andrea Farkas Patenaude, PhD14, Sean Phipps, PhD15, O. J. Sahler, MD16, Barbara Sourkes, PhD17 and Lonnie Zeltzer, MD18

1Temple University, 2National Cancer Institute, 3Medical College of Wisconsin, 4Non-Profit Healthcare and Educational Consultants, 5Vanderbilt University, 6University of Mississippi Medical Center, 7University of Colorado and Health Sciences Center, 8Akron Children's Hospital, 9Children's Hospital Los Angeles, 10Children's Hospital of Philadelphia, 11University of Alabama at Birmingham, 12University of Oklahoma Health Sciences Center, 13University of Pittsburgh, 14Dana Farber Cancer Institute, 15St Jude Children's Research Hospital, 16University of Rochester Medical Center, 17Stanford University School of Medicine, and 18David Geffen School of Medicine at UCLA

All correspondence concerning this article should be addressed to Ronald T. Brown, PhD, ABPP, Temple University, College of Health Professions, 3307 North Broad Street, 300 Jones Hall, Philadelphia, PA 19140, USA. E-mail: rtbrown{at}temple.edu


  Abstract

Objective To examine the chronic illness literature and evaluate the impact on single parenting and children and adolescents with chronic illness. Methods We conducted literature reviews of relevant research pertaining to single-parent families on PubMed, Medline, and PsychINFO and also surveyed pertinent book chapters and all of the articles from the Journal of Pediatric Psychology since 1987 for articles, specifically examining the potential associations of single (lone) parenting versus two-parent households on children's psychosocial functioning and the impact of the child's illness on caregiver functioning. Results While the literature has examined and discussed the stressors associated with parenting a child with an illness, including the impact of illness on finances, family roles, and caregiver burden, few studies have examined single parents of children and adolescents with chronic illnesses and related stressors stemming from being a lone caregiver. Conclusions There is a dearth of studies examining the association between lone parenting and psychosocial functioning among children and adolescents with chronic illnesses. Specific questions necessitating future investigation are summarized and recommendations are made for future research in this important area of inquiry.

Key words: chronic illness; lone parenting; psychosocial functioning.

Received August 13, 2007; accepted August 13, 2007


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