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Journal of Pediatric Psychology Advance Access originally published online on September 10, 2008
Journal of Pediatric Psychology 2009 34(5):523-529; doi:10.1093/jpepsy/jsn096
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© The Author 2008. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org

This article appears in the following Journal of Pediatric Psychology issue: Special Issue: eHealth in Pediatric Psychology [View the issue table of contents]

Brief report: A Pilot Study of a Web-based Resource for Families of Children with Cancer

Linda J. Ewing, PhD, RN1, Kristin Long, BS2, Armando Rotondi, PhD3, Chelsea Howe, MA4, Lauren Bill, BS5 and Anna L. Marsland, PhD, RN2

1Department of Psychiatry, University of Pittsburgh School of Medicine, 2Department of Psychology, University of Pittsburgh, 3Critical Care Medicine, University of Pittsburgh School of Medicine, 4University of Pittsburgh Medical Center and 5Community Counseling Program, Ohio State University

All correspondence concerning this article should be addressed to Linda J. Ewing, PHD, RN, Department of Psychiatry, University of Pittsburgh School of Medicine, 3811 O’Hara Street, Pittsburgh, PA 15213, USA. E-mail: ewinglj{at}upmc.edu


  Abstract

Objective To develop a Web-based resource for families of children newly diagnosed with cancer and examine the viability of this modality of providing support. Methods Twenty-one children (8–17 years) newly diagnosed with cancer and their families were enrolled. Quantitative data on Web site utilization and frequency of accessing specific sections and qualitative data on participant satisfaction are reported. Results Twenty-one families comprising 51 participants (children with cancer, parents, and siblings) had access to the Web site. Utilization was lower than anticipated, with members of only nine families accessing the site. The majority of these hits were on peer discussion groups. Conclusion Further research is warranted to examine whether the Internet is a viable method of delivering support to families affected by childhood cancer. The current pattern of results suggests that the timing of its introduction and the method used to train families may affect utilization.

Key words: social support; cancer and oncology; parent stress.

Received February 27, 2008; revision received August 15, 2008; accepted August 20, 2008


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