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Journal of Pediatric Psychology Advance Access originally published online on January 23, 2009
Journal of Pediatric Psychology 2009 34(9):954-965; doi:10.1093/jpepsy/jsn144
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© The Author 2009. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org

Health-Related Hindrance of Personal Goal Pursuit and Well-Being of Young Adults with Cystic Fibrosis, Pediatric Cancer Survivors, and Peers without a History of Chronic Illness

Lisa A Schwartz, PhD1 and Dennis Drotar, PhD2

1Department of Pediatrics, Division of Oncology, The Children's Hospital of Philadelphia and 2Department of Pediatrics, Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center

All correspondence concerning this article should be addressed to: Lisa A. Schwartz, PhD, The Children's Hospital of Philadelphia, Division of Oncology, 34th and Civic Center Blvd, Philadelphia, PA 19104, USA. E-mail: schwartzl{at}email.chop.edu


  Abstract

Objective Study examined content of personal goals, health-related hindrance (HRH; i.e., impact of health on goals), and relationship of HRH to health status and psychological well-being in young adults with cystic fibrosis (CF; n = 48), who survived childhood cancer (n = 57), and without history of chronic illness (n = 105). Methods Participants completed measures of life events, quality of life, psychological well-being, and goals. Results No group differences were found on goal content. HRH significantly related to subjective well-being and distress after controlling for demographics, negative life events, physical health-related quality of life, disease status, and self-efficacy. HRH related to health status variables. Cancer survivors without cancer late effects had significantly less HRH than the other groups. Conclusions Health status may affect pursuit of personal goals and relate to well-being of young adults. The assessment of HRH has potential clinical utility for targeting interventions and warrants further research.

Key words: cancer survivors; cystic fibrosis; goals; hindrance; pediatric; well-being; young adults.

Received March 17, 2008; revision received December 5, 2008; accepted December 16, 2008


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