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Journal of Pediatric Psychology 7(3) pp. 253-261, 1982
© 1982 Society of Pediatric Psychology

research-article

Conceptions of Cancer: The Perspectives of Child and Adolescent Patients and Their Families1

Elizabeth J. Susman2, Stephen P. Hersh, Ellen D. Nannis, Barbara E. Strope, Pamela J. Woodruff, Philip A. Pizzo and Arthur S. Levine

National Institute of Mental Health, Pediatric Oncology Branch National Cancer Institute

2All correspondence should be sent to Elizabeth J. Susman, Laboratory of Developmental Psychology, Building UK, National Institute of Mental Health, 9000 Rockville Pike, Bethesda, Maryland 20205

The study examined what child and adolescent cancer patients understand about their disease and treatment. Patients' conceptions of cancer were explored in relation to two factors: their families' conceptions and their age. Participants were child and adolescent cancer patients undergoing intensive treatment for advanced stages of solid tumors and lymphomas, and a member of the family of each patient. A structured taped interview was used to determine knowledge of cancer and treatment. Categories were constructed which allowed trained raters to assign a l-to-9 rating to participants' responses to interview questions. Patient scores were related to their own family members' scores on the following categories: Knowledge of Illness, Future Affect, Future Reality, and Participation in the Environment. Patient scores were related to the scores of random family members on Complexity of Knowledge and Life Orientation. For the patients, age was negatively related to Life Orientation.


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