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Journal of Pediatric Psychology Advance Access published online on June 24, 2008
Journal of Pediatric Psychology, doi:10.1093/jpepsy/jsn056
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© The Author 2008. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org

Parent Quality of Life in the Context of Pediatric Inflammatory Bowel Disease

Rachel Neff Greenley, PhD1 and Carin Cunningham, PhD2

1Medical College of Wisconsin and 2Case Western Reserve University School of Medicine

All correspondence concerning this article should be addressed to Rachel Neff Greenley, PhD, Medical College of Wisconsin, Department of Pediatrics, Division of Pediatric Gastroenterology and Nutrition, 8701 Watertown Plank Road Mail Stop B610, Milwaukee, WI 53226, USA. E-mail: RGreenle{at}mcw.edu


  Abstract

Objective To describe the quality of life (QoL) of parents of youth with inflammatory bowel disease (IBD) and examine youth disease activity (DA) and youth QoL as predictors of parent QoL. Methods Forty-nine youth with IBD (ages 10–18) and a parent completed measures of demographics, parent QoL, and youth QoL. Youth DA ratings were obtained from medical records. Results Parental QoL was higher in several domains compared to the normative sample, with the greatest differences reported in physical functioning domains. Although patient demographic factors did not explain significant variance in parent QoL, greater DA was associated with lower parent QoL in mental health (MH) and physical health (PH) domains. Higher youth QoL was associated with higher parent QoL in the MH domain only. Conclusions Although as a group parental QoL was high, when youth are experiencing disease exacerbations or impaired QoL, parents may benefit from assessment and support.

Key words: chronic illness; inflammatory bowel disease; parents; quality of life.

Received February 1, 2008; revision received May 11, 2008; accepted May 13, 2008


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