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Journal of Pediatric Psychology Advance Access published online on November 23, 2008
Journal of Pediatric Psychology, doi:10.1093/jpepsy/jsn121
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© The Author 2008. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org

Use of Handheld Wireless Technology for a Home-based Sickle Cell Pain Management Protocol

Catherine B. McClellan, PhD1, Jeffrey C. Schatz, PhD1, Eve Puffer, MA1, Carmen E. Sanchez, BS1, Melita T. Stancil, BS1 and Carla W. Roberts, MD2

1Department of Psychology and 2Department of Pediatrics, University of South Carolina

All correspondence concerning this article should be addressed to Catherine B. McClellan, Department of Psychology, Barnwell Hall, 1512 Pendleton Street, University of South Carolina, Columbia, SC 29208, USA. E-mail: mcclellb{at}gwm.sc.edu


  Abstract

Purpose To evaluate use of a handheld electronic wireless device to implement a pain management protocol for participants with sickle cell disease (SCD). Methods Participants were 19 patients with SCD aged 9–20 who experienced vaso-occlusive pain. A single-session training on the use of cognitive–behavioral coping skills was followed by instruction on how to practice these skills and monitor daily pain experience using the device. Daily pain experience and practice of coping skills were collected for the 8-week intervention period using wireless technology. Results High rates of participation, daily diary completion and consumer satisfaction support the use of handheld wireless devices to implement this protocol. A comparison of the rates of self and device-recorded skills practice provides important information about the use of electronic monitoring for behavioral interventions. Conclusion Wireless data transfer technology has significant potential to become a practical method to improve symptom monitoring and communication between patients and providers.

Key words: coping skills and adjustment; chronic and recurrent pain; e-health; pain; sickle cell disease.

Received February 28, 2008; revision received October 23, 2008; accepted October 28, 2008


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