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Journal of Pediatric Psychology Advance Access published online on March 6, 2009
Journal of Pediatric Psychology, doi:10.1093/jpepsy/jsp003
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Published by Oxford University Press on behalf of the Society of Pediatric Psychology 2009

Generic and Diabetes-specific Parent–Child Behaviors and Quality of Life Among Youth with Type 1 Diabetes

Jill Weissberg-Benchell, PhD1, Tonja Nansel, PhD2, Grayson Holmbeck, PhD3, Rusan Chen, PhD4, Barbara Anderson, PhD5, Tim Wysocki, PhD6, Lori Laffel, MD7 and For the Steering Committee of the Family Management of Diabetes Study

1Children's Memorial Hospital, 2National Institute of Child Health and Development, 3Loyola University, 4Georgetown University, 5Texas Children's Hospital, 6Nemours Children's Clinic, and 7Joslin Diabetes Center

All correspondence concerning this article should be addressed to Dr. Jill Weissberg-Benchell, Children's Memorial Hospital, Department of Child and Adolescent Psychiatry, 2300 Children's Plaza, Box 10, Chicago, Illinois 60614, USA. E-mail: jwbenchell{at}childrensmemorial.org


  Abstract

Objective To evaluate associations among parent–child behaviors and generic and diabetes-specific health-related quality of life (HRQOL) in a multi-site sample of youth with type 1 diabetes. Method One hundred and twenty-one youth and their primary caregivers completed measures of parent–child behaviors, child HRQOL, and participated in an observed family interaction task. Results Diabetes-specific parent–child variables were associated significantly with both generic and diabetes-specific HRQOL above and beyond the contributions of demographic and generic parent-child variables, accounting for between 13% and 31% of the variance in HRQOL. Diabetes-specific family conflict and negative diabetes-specific family communication were associated with lower HRQOL. Collaborative parent involvement in diabetes care was associated with higher levels of HRQOL. Conclusions Interventions that target diabetes-specific family interactions will be beneficial to the quality of life of children with type 1 diabetes.

Key words: family conflict; family interactions; parent–child behavior; quality of life; type 1 diabetes..

Received March 31, 2008; revision received January 9, 2009; accepted January 9, 2009


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