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Journal of Pediatric Psychology Advance Access originally published online on May 7, 2009
Journal of Pediatric Psychology 2009 34(9):999-1007; doi:10.1093/jpepsy/jsp032
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© The Author 2009. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org

Validity and Reliability of an Adolescent and Parent Rating Scale of Type 1 Diabetes Adherence Behaviors: The Self-Care Inventory (SCI)

Adam B. Lewin, PhD1, Annette M. LaGreca, PhD2, Gary R. Geffken, PhD3, Laura B. Williams, PhD4, Danny C. Duke, MS5, Eric A. Storch, PhD6 and Janet H. Silverstein, MD7

1Department of Psychiatry & Biobehavioral Sciences, Semel Institute for Neuroscience and Human Behavior, UCLA, 2Department of Psychology, University of Miami, 3Departments of Psychiatry, Pediatrics, and Clinical & Health Psychology, University of Florida, 4Department of Behavioral Medicine & Clinical Psychology, Cincinnati Children's Hospital, 5Texas Children's Hospital, 6Departments of Pediatrics & Psychiatry, University of South Florida and 7Department of Pediatrics, University of Florida

All correspondence concerning this article should be addressed to Adam B. Lewin, UCLA Semel Institute for Neuroscience & Human Behavior, 760 Westwood Plaza, Rm. 58-219, Los Angeles, CA, 90024, USA. E-mail: alewin{at}mednet.ucla.edu


  Abstract

Objective Accurate assessment of diabetes regimen adherence behaviors in youth is a challenging endeavor and is limited by a paucity of empirically supported measures. The purpose of this research is to further demonstrate the validity and reliability of the Self-Care Inventory (SCI), a youth and parent report measure of adherence with diabetes self-care behaviors. The SCI was chosen given its ease of implementation, applicability to multiple diabetes regimens, and dual parent/youth formats. Methods Participants were 164 youth with type 1 diabetes and a parent. Measures were administered at regular office visits to a tertiary care diabetes clinic. Results The SCI has strong psychometric properties, including adequate internal consistency, parent–youth agreement, and test-retest agreement. Relations between the SCI and a structured interview of diabetes adherence (the Diabetes Self-Management Profile; DSMP) and hemoglobin A1c (HbA1c) were strong. Conclusions In addition to demonstrating strong psychometrics, this research provides independent support for the SCI. Thus, the SCI is consistent with recent criteria proposed by Quittner et al. (Journal of Pediatric Psychology, 33, 916–936) for an empirically supported measure of regimen adherence. Although other methods of accessing adherence may provide more comprehensive assessments, the brevity, ease-of-implementation, and robustness for multiple regimens makes the SCI an ideal tool for clinicians and researchers.

Key words: adherence; children; self-care inventory; type 1 diabetes..

Received December 16, 2008; revision received March 16, 2009; accepted March 19, 2009


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