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Journal of Pediatric Psychology Advance Access published online on June 19, 2009
Journal of Pediatric Psychology, doi:10.1093/jpepsy/jsp051
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© The Author 2009. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org

Transition to Adult Services among Behaviorally Infected Adolescents with HIV—A Qualitative Study

Jessica M. Valenzuela, PhD1, Cindy L. Buchanan, PhD2, Jerilynn Radcliffe, PhD, ABPP3,4, Christine Ambrose, MSW, LSW4, Linda A. Hawkins, MSEd4, Mary Tanney, RN, MSN, CRNP, MPH4 and Bret J. Rudy, MD5

1Division of Behavioral Medicine, Cincinnati Children's Hospital Medical Center,2Cardiothoracic Transplant Program, The Children's Hospital of Philadelphia,3Adolescent Medicine, The Children's Hospital of Philadelphia,4University of Pennsylvania School of Medicine and 5Department of Pediatrics, New York University School of Medicine

All correspondence concerning this article should be addressed to Jessica Valenzuela, Cincinnati Children's Hospital Medical Center, MLC 3015, 3333 Burnet Avenue, Cincinnati, OH 45229-3039, USA. E-mail: jessica.valenzuela{at}cchmc.org


  Abstract

Objectives The present study aimed to describe the experiences of youth with behaviorally acquired HIV who transitioned to adult care, to identify difficulties encountered, and to explore areas for improvement. Methods Semi-structured interviews were conducted with 10 young adults ranging from 24 to 29 years old. Themes were derived from coding participant interviews. Results Participants experienced adolescent care providers as an important source of support, felt anxiety about transition, provided recommendations for improving the process, and described significant changes associated with adult HIV care. Conclusions Findings support the development of a clear and structured transition process to address patients’ fears and worries through early communication, planning, and coordination for adult healthcare, highlighting the need for future research in this area.

Key words: adolescence; HIV; transition; qualitative..

Received January 12, 2009; revision received May 15, 2009; accepted May 18, 2009


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