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Journal of Pediatric Psychology Advance Access published online on June 29, 2009
Journal of Pediatric Psychology, doi:10.1093/jpepsy/jsp052
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© The Author 2009. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org

Brief Report: Development of the Inflammatory Bowel Disease Family Responsibility Questionnaire

Rachel Neff Greenley, PhD1, Alyssa Doughty, BS1, Mike Stephens, MD1 and Subra Kugathasan, MD2

1Medical College of Wisconsin and 2Emory University School of Medicine

All correspondence concerning this article should be addressed to Rachel Neff Greenley, PhD, Medical College of Wisconsin, Department of Pediatrics, Division of Pediatric Gastroenterology and Nutrition, 8701 Watertown Plank Road Mail Stop B610, Milwaukee, WI 53226. E-mail: RGreenle{at}mcw.edu


  Abstract

Objective To present psychometric data on youth and parent versions of the Inflammatory Bowel Disease-Family Responsibility Questionnaire (IBD-FRQ), a measure of family involvement in IBD management. Methods Fifty-eight adolescents with inflammatory bowel disease (IBD), along with 55 mothers and 26 fathers completed the IBD-FRQ, a demographics questionnaire, and a measure of family involvement in decision making in non-IBD domains. Medical information was obtained via chart review. Results Support for the internal consistency of the IBD-FRQ was obtained. Evidence of validity was documented via moderate to high intercorrelations among reporters. Youth involvement increased with youth age, while maternal and paternal involvement decreased with youth age. Across all reporters, maternal involvement was higher than paternal involvement. Conclusions Preliminary analyses offer support for the measure's reliability and validity. The measure shows promise as a means of assessing family involvement in IBD condition management; however, further validation studies are needed.

Key words: chronic illness; family functioning; gastroenterology; inflammatory bowel disease..

Received November 6, 2008; revision received May 19, 2009; accepted May 26, 2009


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