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Journal of Pediatric Psychology Advance Access published online on July 9, 2009
Journal of Pediatric Psychology, doi:10.1093/jpepsy/jsp055
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© The Author 2009. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org

Brief Report: Normative Data on a Structured Interview for Diabetes Adherence in Childhood

Adam B. Lewin, PhD1,2, Eric A. Storch, PhD1, Laura B. Williams, PhD3, Danny C. Duke, PhD4, Janet H. Silverstein, MD5 and Gary R. Geffken, PhD5

1University of South Florida, Rothman Center for Pediatric Neuropsychiatry, 2UCLA Semel Institute for Neuroscience and Human behavior, 3Cincinnati Children's Hospital Medical Center, 4Texas Children's Hospital and 5University of Florida

All correspondence concerning this article should be addressed to Adam B. Lewin, PhD, Assistant Professor of Pediatrics, University of South Florida School of Medicine, Department of Pediatrics, Rothman Center for Pediatric Neuropsychiatry, 800 6th Street South, 4th Floor North Box 7523, St. Petersburg, FL 33701. E-mail: alewin{at}mednet.ucla.edu


  Abstract

Objective This study provides normative data, divided by age and gender, for the Diabetes Self-Management Profile (DSMP), an empirically supported structured interview that assesses adherence with the type 1 diabetes treatment regimen. Despite wide use, normative data on the DSMP have yet to be reported. Methods The sample included 444 parents and 275 youth with type 1 diabetes. The DSMP was administered by a trained clinician. Results For both child and parent ratings of adherence, means and standard deviations for the overall sample and subdivision by gender and three age groups are presented for normative comparisons. Subscale data (e.g., glucose monitoring, diet, exercise) are similarly presented. Lower adherence scores were reported among older adolescents relative to preadolescents. Conclusions The literature has lacked normative data on pediatric diabetes adherence. These data present means and standard deviations for parent and child ratings of regimen adherence from a relatively large sample of youth with diabetes that can be utilized for normative comparisons for clinical and research purposes.

Key words: adherence; children; diabetes; diabetes self-management profile normative data; DSMP; norms; type 1..

Received March 6, 2009; revision received June 1, 2009; accepted June 1, 2009


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