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Journal of Pediatric Psychology Advance Access published online on November 10, 2009
Journal of Pediatric Psychology, doi:10.1093/jpepsy/jsp099
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© The Author 2009. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org

The Impact of Pediatric Chronic Pain on Parents’ Health-Related Quality of Life and Family Functioning: Reliability and Validity of the PedsQL 4.0 Family Impact Module

Kristen EJastrowski Mano, PhD1, Kimberly Anderson Khan, PsyD1, Renee J Ladwig, MSN, CNS, LMFT2 and Steven J Weisman, MD1,2

1Department of Anesthesiology, Medical College of Wisconsin and 2Children's Hospital of Wisconsin

All correspondence concerning this article should be sent to Kristen E. Jastrowski Mano, Jane B. Pettit Pain and Palliative Care Center, Children's Hospital of Wisconsin, MS 792, 9000 W. Wisconsin Avenue, Milwaukee, WI 53226, USA. E-mail: kristen.jastrowski{at}gmail.com


  Abstract

Objective To evaluate the psychometric properties of the Family Impact Module (FIM), a parent self-report measure of health-related quality of life (HRQOL) and family functioning, among parents of youth with chronic pain. Methods Parents (N = 458) completed the FIM (Total Impact, HRQOL, and Family Functioning scales); parents and youth (N = 332) completed measures of pain catastrophizing, pediatric quality of life, and emotional/behavioral functioning. Results The FIM demonstrated strong internal consistency and item-total correlations. All FIM scales were positively associated with pain catastrophizing, functional disability, and emotional/behavioral problems; and inversely related to pediatric quality of life. Mothers reported significantly worse HRQOL than fathers. Mothers and fathers did not differ on reports of Family Functioning. HRQOL and Family Functioning did not differ as a function of pain diagnosis. Conclusion The FIM appears to be a suitable measure of parent self-reported HRQOL and family functioning in pediatric chronic pain.

Key words: health-related quality of life; parents; chronic and recurrent pain; family functioning.

Received October 2, 2008; revision received September 24, 2009; accepted October 3, 2009


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