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Journal of Pediatric Psychology, Vol. 26, No. 4, 2001, pp. 203-214
© 2001 Society of Pediatric Psychology

Multidimensional Assessment of Pain in Pediatric Sickle Cell Disease

Sally E. Graumlich, EdD, CHES1, Scott W. Powers, PhD1,2, Kelly C. Byars, PsyD1, Laura A. Schwarber, BS1, Monica J. Mitchell, PhD1 and Karen A. Kalinyak, MD1,2

1 Cincinnati Children's Hospital Medical Center, 2 University of Cincinnati College of Medicine

All correspondence should be sent to Scott W. Powers, Associate Professor of Pediatrics, Cincinnati Children's Hospital Medical Center, 3333 Burnet Avenue, Division of Psychology, CH-1, Cincinnati, Ohio 45229-3039. E-mail: scottpowers{at}chmcc.org .

Objective: To conduct a multidimensional assessment of pain in children with sickle cell disease (SCD). Variables included parent and child reports of pain location and intensity, qualitative descriptors of pain, perceptions regarding the seriousness and severity of SCD, and environmental and emotional factors associated with pain.

Methods: We replicated previous SCD pain research and applied advanced assessment methodology and research design to a population of pediatric SCD patients and their caregivers.

Results: Convergence of data supports the utility of multidimensional pain assessment with parents and children with SCD. SCD pain is experienced as intense and severe in home and hospital environments.

Conclusions: Findings support including children as reporters in clinical assessment of SCD pain. Integration of assessment strategies into home-based pain management may improve health outcomes. Future research should target biobehavioral treatment for pediatric SCD pain.

Key words: pediatric pain; sickle cell disease; behavioral assessment; children; parents.


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