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Journal of Pediatric Psychology, Vol. 28, No. 4, 2003, pp. 275-279
© 2003 Society of Pediatric Psychology

Brief Report: Child-Rearing Practices of Caregivers With and Without a Child With Juvenile Rheumatoid Arthritis: Perspectives of Caregivers and Professionals

Cynthia A. Gerhardt, PhD, Kathryn Vannatta, PhD, J. Mark McKellop, PhD, Janalee Taylor, RN, Murray Passo, MD, Jennifer Reiter-Purtill, MA, Meg Zeller, PhD and Robert B. Noll, PhD

Cincinnati Children's Hospital Medical Center and University of Cincinnati

All correspondence should be sent to Cynthia A. Gerhardt, Division of Hematology/Oncology, Children's Hospital Medical Center, 3333 Burnet Avenue, Cincinnati, Ohio 45229-3039. E-mail: cindy.gerhardt{at}chmcc.org. Anne Kazak, PhD, ABPP, former Editor, served as accepting editor on this article.

Objective To evaluate predictions from professionals in pediatric rheumatology regarding the child-rearing practices of caregivers of children with juvenile rheumatoid arthritis (JRA) and healthy classmates. Methods Sixteen professionals identified items from the Child-Rearing Practices Report (CRPR) that were expected to differentiate between caregivers of children with JRA (64 mothers, 45 fathers) and caregivers of healthy classmates (64 mothers, 40 fathers). Families were interviewed, and physician ratings of disease severity were obtained. Results Experts predicted difficulties in protectiveness, discipline, and worry. Ratings from parents of children with JRA showed modest agreement with the professionals, surprising similarity to controls, and a limited association with disease factors. Conclusions Contrary to expert opinion, JRA has only a modest influence on some child-rearing practices. Educating health care providers may minimize misperceptions about caring for children with JRA, and screening parents of children with more severe disease may assist in allocating education and services for families.

Key words: juvenile rheumatoid arthritis; child-rearing practices; chronic illness; parenting..


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