Skip Navigation

Journal of Pediatric Psychology 2004 29(7):565-570; doi:10.1093/jpepsy/jsh058
This Article
Right arrow Full Text Freely available
Right arrow FREE Full Text (PDF) Freely available
Right arrow Alert me when this article is cited
Right arrow Alert me if a correction is posted
Services
Right arrow Email this article to a friend
Right arrow Similar articles in this journal
Right arrow Similar articles in ISI Web of Science
Right arrow Similar articles in PubMed
Right arrow Alert me to new issues of the journal
Right arrow Add to My Personal Archive
Right arrow Download to citation manager
Right arrow Search for citing articles in:
ISI Web of Science (2)
Right arrowRequest Permissions
Right arrow Disclaimer
Google Scholar
Right arrow Articles by Waisbren, S. E.
Right arrow Articles by Levy, H. L.
Right arrow Search for Related Content
PubMed
Right arrow PubMed Citation
Right arrow Articles by Waisbren, S. E.
Right arrow Articles by Levy, H. L.
Social Bookmarking
Add to CiteULike   Add to Connotea   Add to Del.icio.us  
What's this?

Journal of Pediatric Psychology vol. 29 no. 7 © Society of Pediatric Psychology 2004; all rights reserved.

Brief Report: Predictors of Parenting Stress Among Parents of Children With Biochemical Genetic Disorders

Susan E. Waisbren, PhD1, Michelle Rones, PhD1, Catherine Y. Read, PhD, RN2, Deborah Marsden, MD1 and Harvey L. Levy, MD1

1 Children’s Hospital and Harvard Medical School, and 2 Boston College School of Nursing

All correspondence should be sent to Susan E. Waisbren, Children’s Hospital, Boston, Inborn Errors of Metabolism Clinic, IC Smith-108, Boston, Massachusetts 02115. E-mail: susan.waisbren{at}childrens.harvard.edu

Objective To examine predictors of parenting stress in parents whose children were diagnosed with a biochemical genetic disorder clinically or through newborn screening. Methods Parents of 263 children with biochemical genetic disorders (139 identified by newborn screening, 124 identified clinically) completed interviews focused on child health, medical service use, satisfaction with services, parenting stress, and family functioning. Results Multiple regression analyses suggested that child adaptive functioning, parental satisfaction with support, and difficulties parents experienced meeting their child’s health care needs were associated with scores on the Parenting Stress Index (R2 = .51). Conclusions Initiatives to improve child adaptive functioning and parental support as well as practical assistance to help parents meet their child’s health needs may reduce parental stress and family disruption in this population.

Key words: biochemical genetic disorders; metabolic disorders; parenting stress; newborn screening.


Add to CiteULike CiteULike   Add to Connotea Connotea   Add to Del.icio.us Del.icio.us    What's this?


This article has been cited by other articles:


Home page
 J Pediatr PsycholHome page
D. B. Bailey Jr, F. D. Armstrong, A. R. Kemper, D. Skinner, and S. F. Warren
Supporting Family Adaptation to Presymptomatic and "Untreatable" Conditions in an Era of Expanded Newborn Screening
J. Pediatr. Psychol., March 30, 2008; (2008) jsn032v1.
[Abstract] [Full Text] [PDF]


Disclaimer:
Please note that abstracts for content published before 1996 were created through digital scanning and may therefore not exactly replicate the text of the original print issues. All efforts have been made to ensure accuracy, but the Publisher will not be held responsible for any remaining inaccuracies. If you require any further clarification, please contact our Customer Services Department.