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Journal of Pediatric Psychology Advance Access originally published online on February 23, 2005
Journal of Pediatric Psychology 2005 30(3):231-234; doi:10.1093/jpepsy/jsi033
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Journal of Pediatric Psychology vol. 30 no. 3 © Society of Pediatric Psychology 2005; all rights reserved.

Commentary: SES, Ethnicity and Goodness-of-Fit in Clinician-Parent Communication during Pediatric Cancer Trials

Celia B. Fisher, PhD

Fordham University

All correspondence should be sent to Celia B. Fisher, Center for Ethics Education, Fordham University, Department of Psychology, Dealy Hall, 441 East Fordham Road, Bronx, New York 10458. E-mail: fisher@fordham.edu.

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Creating appropriate parental permission contexts for clinical trials involving newly diagnosed pediatric cancer patients is uniquely challenging. Unlike most other childhood disorders, pediatric cancer is most often treated through participation in oncology research or in hospital settings in which such research is actively conducted (Ablett & Pinkerton, 2003Go; Aleksa & Koren, 2002Go; Bleyer, 2002Go; Pletsch & Stevens, 2001Go). In addition, because treatment decisions must be made very quickly after diagnosis, parents are often asked to enter their child in a clinical protocol within hours or just a few days after learning their child’s diagnosis. Thus, consent to research participation occurs during one of the most stressful periods in a family’s life and before parents have an opportunity to accept or learn about the disease and alternative treatments (Levi, Marsick, Drotar, & Kodish, 2000Go). Finally, because of the life-threatening nature of the disease and the adverse, . . . [Full Text of this Article]


   Direct Effects of SES and Ethnicity
 

   Effects of SES and Ethnicity on Clinician Communication
 
Communication Barriers
Goodness-of-Fit

   A Goodness-of-Fit Ethic for Informed Consent
 

   Conclusion
 

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[Abstract] [PDF]