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Journal of Pediatric Psychology Advance Access originally published online on September 8, 2005
Journal of Pediatric Psychology 2006 31(10):1024-1035; doi:10.1093/jpepsy/jsj075
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© The Author 2005. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oupjournals.org

Longitudinal Changes in Family Outcomes of Very Low Birth Weight

Melisa Moore, MA1, H. Gerry Taylor, PhD2, Nancy Klein, PhD3, Nori Minich, BS2 and Maureen Hack, MBChB2

1 Department of Psychology, Case Western Reserve University, 2 Department of Pediatrics, Case Western Reserve University and Rainbow Babies & Children’s Hospital, University Hospitals of Cleveland, and, 3 Department of Education, Cleveland State University

All correspondence concerning this article should be addressed to H. Gerry Taylor, PhD, Department of Pediatrics, Rainbow Babies & Children’s Hospital, 11100 Euclid Avenue, Cleveland, Ohio 44106-6038. E-mail: hudson.taylor{at}case.edu.

Objectives Although children with very low birth weight (VLBW, <1500 g) are at high risk for developmental impairments, we know little about the long-term effects of VLBW on families. This study examined long-term family outcomes and their stability over time. Methods Participants were the families of 64 children with <750 g birth weight, 54 with 750–1499 g birth weight, and 66 term-born controls. Family burden and parental distress were assessed annually as part of longitudinal follow-up of the children from mean ages 11–14 years. Results Family burden and parental distress were higher in the <750 g group than in the term-born group, but differences varied with the child’s age and family environment. Conclusions The findings document long-term effects of VLBW on families that are moderated by the degree of low birth weight, child’s age, and family environment.

Key words: family outcomes; low birth weight; longitudinal change.


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