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Journal of Pediatric Psychology Advance Access originally published online on June 21, 2008
Journal of Pediatric Psychology 2009 34(1):30-40; doi:10.1093/jpepsy/jsn058
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Published by Oxford University Press on behalf of the Society of Pediatric Psychology 2008

Development and Validation of the Collaborative Parent Involvement Scale for Youths with Type 1 Diabetes

Tonja R. Nansel, PhD1, Alisha J. Rovner, PhD1, Denise Haynie, PhD1, Ronald J. Iannotti, PhD1, Bruce Simons-Morton, EdD1, Timothy Wysocki, PhD2, Barbara Anderson, PhD3, Jill Weissberg-Benchell, PhD4 and Lori Laffel, MD MPH5

1Division of Epidemiology, Statistics and Prevention Research, Eunice Kennedy Shriver National Institute of Child Health and Human Development, NIH, DHHS, 2Nemours Children's Clinic, Center for Pediatric Psychology Research, 3Baylor College of Medicine, 4Children's Memorial Hospital, and 5Joslin Diabetes Center

All correspondence concerning this article should be addressed to Dr Tonja Nansel, 6100 Executive Blvd, Rm. 7B13R, MSC 7510, Bethesda, MD 20892-7510, USA. E-mail: nanselt{at}mail.nih.gov


  Abstract

Objective To develop and test a youth-report measure of collaborative parent involvement in type 1 diabetes management. Methods Initial item development and testing were conducted with 81 youths; scale refinement and validation were conducted with 122 youths from four geographic regions. Descriptive statistics, Cronbach's {alpha}, and factor analyses were conducted to select items comprising the scale. Correlations with parenting style and parent diabetes responsibility were examined. Multiple regression analyses examining associations with quality of life, adherence, and glycemic control were conducted to assess concurrent validity. Results The measure demonstrated strong internal consistency. It was modestly associated with parenting style, but not with parent responsibility for diabetes management. A consistent pattern of associations with quality of life and adherence provide support for the measure's concurrent validity. Conclusions This brief youth-report measure of parent collaborative involvement assesses a unique dimension of parent involvement in diabetes management associated with important youth outcomes.

Key words: adherence; diabetes; parenting; quality of life.

Received September 18, 2007; revision received April 9, 2008; accepted May 14, 2008


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