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Journal of Pediatric Psychology Advance Access published online on February 23, 2005
Journal of Pediatric Psychology, doi:10.1093/jpepsy/jsi068
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Journal of Pediatric Psychology © Society of Pediatric Psychology 2005; all rights reserved.
Received April 22, 2004
Revised July 27, 2004
Accepted October 14, 2004

Article

Informant Discrepancy in Perceptions of Sickle Cell Disease Severity

Mark Connelly PhD1*, Janelle L. Wagner PhD1, Ronald T. Brown PhD1, Carrie Rittle BS1, Barbara Cloues PhD1, and Lloyd "Chip" Taylor PhD1

1 Medical University of South Carolina

* To whom correspondence should be addressed.
Mark Connelly, E-mail: connelma{at}musc.edu


  Abstract

Objectives To evaluate whether informants (children, caregivers, and physicians) differ in their perceptions of chronic disease severity and the extent to which these differences can be explained by objective indices of disease severity, and adjustment of the caregiver. Methods Participants were 58 children and adolescents between the ages of 8 and 18 years diagnosed with sickle cell disease. Information on perceptions of disease severity, caregiver adjustment, and biological markers of disease severity was obtained at a routine clinic follow-up appointment. Results Analyses indicated significant differences in perceptions of disease severity. Psychological adjustment of the caregiver and biological indices of disease severity were significant predictors of these differences. Conclusion Implications for the association between chronic disease and adjustment are discussed.

Keywords: sickle cell; chronic disease; child; disease severity; multiple informant assessment; adjustment.
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