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Journal of Pediatric Psychology Advance Access published online on September 8, 2005
Journal of Pediatric Psychology, doi:10.1093/jpepsy/jsj075
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Journal of Pediatric Psychology © The Author 2005. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oupjournals.org
Received April 6, 2004
Revised October 26, 2004
Accepted November 2, 2004

Article

Original Research Article: Longitudinal Changes in Family Outcomes of Very Low Birth Weight

Melisa Moore MA1, H. Gerry Taylor PhD2*, Nancy Klein PhD3, Nori Minich BS2, and Maureen Hack MBChB2

1 Department of Psychology, Case Western Reserve University
2 Department of Pediatrics, Case Western Reserve University and Rainbow Babies & Children’s Hospital, University Hospitals of Cleveland
3 Department of Education, Cleveland State University

* To whom correspondence should be addressed.
H. Gerry Taylor, E-mail: hudson.taylor{at}case.edu


  Abstract

Objectives Although children with very low birth weight (VLBW, <1500 g) are at high risk for developmental impairments, we know little about the long-term effects of VLBW on families. This study examined long-term family outcomes and their stability over time. Methods Participants were the families of 64 children with <750 g birth weight, 54 with 750-1499 g birth weight, and 66 term-born controls. Family burden and parental distress were assessed annually as part of longitudinal follow-up of the children from mean ages 11-14 years. Results Family burden and parental distress were higher in the <750 g group than in the term-born group, but differences varied with the child’s age and family environment. Conclusions The findings document long-term effects of VLBW on families that are moderated by the degree of low birth weight, child’s age, and family environment.

Keywords: family outcomes; low birth weight; longitudinal change.
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