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Journal of Pediatric Psychology Advance Access published online on January 9, 2006
Journal of Pediatric Psychology, doi:10.1093/jpepsy/jsj096
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© The Author 2006. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org
Received February 23, 2005
Revised November 28, 2005
Accepted December 7, 2005

Article

Barriers to Treatment Adherence for Children with Cystic Fibrosis and Asthma: What Gets in the Way?

Avani C. Modi PhD 1 * and Alexandra L. Quittner PhD 2

1 Cincinnati Children’s Hospital Medical Center
2 University of Miami

* To whom correspondence should be addressed.
Avani C. Modi, E-mail: avani.modi{at}cchmc.org


  Abstract

Objectives The purpose of this study was to systematically identify barriers to treatment adherence for children with cystic fibrosis (CF) and asthma, as well as to examine the relationship between the number of barriers and adherence. Methods Participants included 73 children with CF or asthma and their parents. The mean age of the sample was 9.9 years, and 58% were males. Results Results indicated that barriers were quite similar by illness and informant (e.g., parent and child) for the same treatments, but unique barriers were identified for disease-specific treatments. Frequently mentioned barriers across diseases included forgetting, oppositional behaviors, and difficulties with time management. Trends were identified between adherence and barriers, suggesting that a greater number of barriers were related to poorer adherence. Conclusion Overall, this study provided evidence that patients and their parents experience specific barriers within the context of their own illness and highlights the need for disease-specific measures and interventions.

Keywords: barriers; knowledge; patient-provider communication; pulmonary; treatment.
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