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Journal of Pediatric Psychology Advance Access published online on June 28, 2007
Journal of Pediatric Psychology, doi:10.1093/jpepsy/jsm050
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© The Author 2007. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org

The Use of Continuous Subcutaneous Insulin Infusion (CSII): Parental and Professional Perceptions of Self-care Mastery and Autonomy in Children and Adolescents

Jill Weissberg-Benchell, PhD, CDE1, Shirley S Goodman, R.N., CDE2, Jeanne Antisdel Lomaglio, PhD1 and Kathy Zebracki, PhD3

1Childrens's Memorial Hospital, Department of Child and Adolescent Psychiatry, Feinberg School of Medcicine, Northwestern University, 2300 Children's Plaza, Box 10, Chicago, Illinois, 60614, 2Children's Memorial Hospital, Division of Endocrinology, Feinberg School of Medicine, Northwestern University, 2300 Children's Plaza, Box 54, Chicago, Illinois, 60614, and 3Loyola University Chicago, Department of Psychology, 6525 North Sheridan Road, Chicago, Illinois, 60626

All correspondence concerning this article should be addressed to Jill Weissberg-Benchell, E-mail: jwbenchell{at}childrensmemorial.org.


  Abstract

Objective To describe parent-perceived mastery of Continuous Subcutaneous Insulin Infusion (CSII) specific skills and level of autonomy for these tasks among youth with type 1 diabetes. Methods One hundred and sixty-three parents of youth using CSII and 142 diabetes clinicians participated. Parents reported their child's mastery and autonomy of CSII-specific skills. Clinicians indicated the age at which 50% of their patients mastered these skills. Results Parents report CSII skill mastery between 10.9 and 12.8 years. Very few achieved skill mastery on all CSII-related tasks. Parent- and clinician-expectations for age of skill acquisition were consistent with one another. Parents shared CSII task responsibility with their children even after their children have attained skill mastery. Conclusion The recent emphasis on maintaining parental involvement in diabetes care seems to have been translated into clinical practice. Parents remain involved in their child's CSII care even after they believe their child has mastered these skills.

Key words: CSII; self-care autonomy; type 1 diabetes..

Received September 6, 2006; revision received May 18, 2007; accepted May 24, 2007


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